Each year, the ATHN Data Summit invites colleagues from our ATHN-affiliated centers, collaborating partners, and community-based organizations to come together, share discoveries, and celebrate progress on behalf of the blood disorders community.
Precise Data. Powerful Discovery.
Our theme for ATHN Data Summit 2026 is Precise Data. Powerful Discovery. We look forward to welcoming leading experts in blood disorders research and top clinicians to share their insights with our community.
Together, we’ll explore how one data point leads to infinite impact—and how ATHN’s unique data infrastructure supports research to answer scientifically and clinically meaningful questions and drive powerful discovery.
Registration Is Open
Reserve your spot to join us for ATHN Data Summit 2026, October 21-22 at the InterContinental New Orleans, where we’ll celebrate 20 years of progress.
Please note, as the Data Summit has grown, there will be a registration fee this year. This allows us to enhance programming, expand opportunities for engagement, and continue delivering meaningful value to attendees.
We’re excited for you to join us in New Orleans!
ATHN Data Summit 2026 Agenda
The ATHN Data Summit is structured to foster meaningful dialogue and direct engagement across the blood disorders community. Use this agenda to help you plan your visit. Stay tuned here as more details become available. Please note, this schedule is subject to slight changes.
Registration | 10:00 AM–4:00 PM
Welcome | 11:00 AM
ATHN 101: Inside ATHN Systems for New Users | 11:05 AM–12:00 PM
Networking Lunch & Peer Exchange | 12:00–1:00 PM
Setting the Stage for Data Innovation | 1:00–1:10 PM
ATHNdataset | 1:10–2:00 PM
- ATHNdataset Registry
- Beyond Factor Replacement Project
- ADS Forms Structure Overview
Coffee Break | 2:00–2:15 PM
Data Management Forum: Case Studies & Discussion | 2:15–3:00 PM
- Mountain States #807
- Great Plains #674
- Region V-East #427
- Discussion
EMR Integration: Progress, Challenges & the Road Ahead | 3:00–3:20 PM
From Feedback to Action: Key Priorities & Next Steps | 3:20–4:00 PM
Preconference Conclusion | 4:00 PM
DAY 1
Breakfast & Registration | 7:30–8:30 AM
Welcome | 8:30 AM
- Crystal Watson, President & CEO
From Dataset to Decision: How Real-World Data Is Reshaping Bleeding Disorders Care | 8:40–8:55 AM
Hemophilia in Focus
- Hemophilia PUPs – Research Observations and Treatment Considerations | 8:55–9:10 AM
- Hemophilia Natural History – Insights on Bleeding Management | 9:10–9:25 AM
- Hemophilia Gene Therapy – Treatment Strategies and Learnings from the Hemophilia Gene Therapy Outcomes Arm of ATHN Transcends | 9:25–9:40 AM
- ATHNdataset Beyond Factor Replacement Data Validation Project | 9:40–10:15 AM
- Q&A | 10:15–10:30 AM
Coffee Break | 10:30–10:50 AM
Lets’ Get Ready to Rumble! Hemophilia Therapies in Debate
- ATHNdataset Treatment Trends | 10:505–11:00 AM
- Round 1 – Mimetics vs Factor | 11:00–11:20 AM
- Round 2 – To Rebalance or Not to Rebalance | 11:20–11:40 AM
- Champion Debater Trophy Presentation and Q&A | 11:40 AM–12:00 PM
Lunch Break | 12:00–1:00 PM
Concurrent Tracks | 1:00–3:30 PM
- ATHN Physician Think Tank
- A New Era for Nursing Research, Certification, and Discovery | This track is presented in collaboration with the Hemostasis and Thrombosis Nursing Association (HTNA)
- Data Integrity & Insights Exchange – A Collaborative Forum
Transition from Tracks to Main Meeting Room | 3:30–3:40 PM
Hemophilia Alliance – Advocacy in Action | 3:45–4:05 PM
ATHN Leadership Awards | 4:05–4:20 PM
Day 1 Reflections and Closing | 4:20–4:30 PM
20th Anniversary Celebration & Networking Dinner | 5:30–9:00 PM pm
- Private Mississippi Riverboat Experience
- Lively New Orleans Entertainment
- Spirited “Second Line” Parade
- Dynamic Networking Opportunities
Day 2
Breakfast | 7:00–8:00 AM
Welcome | 8:00 AM
- Crystal Watson, President & CEO
EMR Integration
- ATHN EMR Integration Project – Progress and Insights | 8:05–8:20 AM
- Reports from the Field – Integration Case Studies | 8:20–8:50 AM
- Q&A | 8:50–9:00 AM
Leveraging Real-World Data to Support Investigator-Initiated Projects
- Expanding Use of Real-World Data | 9:00–9:10 AM
- Investigator-Initiated Lightning Presentations with Q&A | 9:10–10:40 AM
Coffee Break | 10:40–11:00 AM
Office of Public Health Initiatives (OPHI)
- Community Partner Spotlights | 11:00–11:25 AM
- Elevating Nursing Leadership in Data, Research & Care | 11:25–11:35 AM
- Community Counts Project | 11:35–11:45 AM
- OPHI – Advancing Collaboration and Care | 11:45 AM–12:00 PM
Lunch Break | 12:00–1:15 PM
Meeting the Moment – Research in Action
- ATHN 9 and the VWD Treatment Landscape | 1:15–1:45 PM
- May the Factor Be With Her: Navigating Thrombosis in Women and Girls | 1:45–2:05 PM
- Glanzmann Thrombasthenia: Natural History Observations | 2:05–2:25 PM
- Unlocking the Genomic Landscape of Ultrarare Coagulation Disorders: Insights and Novel Variants from ATHN 10 | 2:25–2:55 PM
- Q&A | 2:55–3:15 PM
Day 2 Reflections and Closing | 3:15–3:30 PM
Hotel Information – Book Now and Save
ATHN Data Summit 2026 attendees will receive a special hotel room rate at the InterContinental New Orleans (444 St. Charles Ave, New Orleans, LA 70130), our conference venue.
Make your reservation by September 25, 2026, to secure the special rate. After that date, reservations will be offered at the standard rate and subject to availability.
Thank You
As always, we are grateful for the generous contributions and support from the ATHN Industry Consortium and Community Partners.
Thank you
to the ATHN Industry Consortium
Thank you
to our Community Partners
For any questions about the ATHN Data Summit, please contact support@athn.org